Welcome to PPMI documentation!

Data Dictionary Version: v0.5.15

Welcome to PPMI Documentation, a centralized source of documentation on both PPMI Original (2010-2020) and PPMI Extended (2020-Present). Click on a table name below to get started.

Category

Tables have been sorted into categories that represent the information they contain. Click on a category name to see only the tables that are apart of that category.

Status

Some tables have concluded collecting data after the implementation of PPMI Extended. Inactive tables are no longer being used, whereas active tables are actively collecting data in PPMI Extended. Ancillary tables come from cores outside of Blackfynn. As of right now, this documentation only covers tables that are collected through the EDC. Thus, we have left the status as “Ancillary”, as we are not certain at this time whether the tables are active or inactive.

Click a status to see only the tables that have that status.

Table Name	Category	Status
Adverse Event Log (AE)	Safety
AV-133 Subject Eligibility (AVELIG)	Early Imaging
AV-133 Imaging (AVIMAG)	Early Imaging
Contact Information Brain Bank (BBNKINF)	Operational
BIOSPECIMEN_CELL_CATALOG (BIOSPECIMEN_CELL_CATALOG)	Ancillary
Biospecimen_Analysis (Biospecimen_Analysis)	Ancillary
Change of Category Form (CHNGCAT)	Operational
Clock Drawing (CLCKDRAW)	Cognitive Assessments
Clinical Diagnosis and Management (CLINDX)	Diagnostic Features
Clinical Labs (CLINLAB)	Biospecimens
CODE_DECODE (CODE_DECODE)	Operational
Cognitive Categorization (COGCATG)	Cognitive Assessments
Cognitive Assessments (COGTIME)	Cognitive Assessments
Conclusion of Study Participation (CONCL)	Enrollment
Concomitant Medications (CONMED)	Medical History
CORIELL (CORIELL)	Ancillary
CORIELL_CATALOG (CORIELL_CATALOG)	Ancillary
CORIELL_SAMPLE_TEST (CORIELL_SAMPLE_TEST)	Ancillary
COVANCE (COVANCE)	Ancillary
Current Medical Conditions Log (CURRCOND)	Diagnostic Features
DaTSCAN Imaging (DATSCAN)	Imaging
Deep Brain Stimulation (DBS)	Medical History
Digital Biomarker Adverse Event Log (DGBAE)	Ancillary
Digital Biomarker Conclusion of Study (DGBCNCL)	Ancillary
Digital Biomarker Eligibility (DGBELG)	Ancillary
Digital Biomarker Subject Participation (DGBSST)	Ancillary
Digital Biomarker Device Accountability (DGDVACCT)	Ancillary
Diagnostic Features (DIAGFEAT)	Diagnostic Features
Genetic PD and Registry PD Cohorts - Diagnostic Questionnaire (DIAGQUES)	Diagnostic Features
Diagnosis Review (DIAGREV)	Diagnostic Features
DNA Sample (DNA)	Biospecimens
Brain and Bank Tissue Donation Plan (DONATPLN)	Operational
DTI Regions of Interest (DTIROI)	Ancillary
Determination of Falls (DTRMFALL)	Medical History
Device Accountability Log (DVACCT)	Ancillary
Device Deficiency Log (DVDEFIC)	Ancillary
Device Placement Log (DVPLACE)	Ancillary
Electrocardiogram (EKG) (EKG)	Early Imaging
Epworth Sleepiness Scale (EPWORTH)	Sleep Assessments
Family History (PD) (FAMHXPD)	Medical History
Family History Sub-Study (FAMHXSUB)	Ancillary
Florbetaben Eligibility (FBELIG)	Ancillary
Florbetaben Imaging (FBIMAG)	Ancillary
Digital Biomarker Full Active Test (FLACTIV)	Ancillary
FOUND (FOUND)	Ancillary
Contact Information FOUND (FOUNDINF)	Operational
FOUNDSRDX (FOUNDSRDX)	Ancillary
Gait Data & Arm swing (GAIT)	Ancillary
Gait Assessment Genetic Cohort (GAITASMT)	Ancillary
Gait Assessment - Inclusion/Exclusion (GAITINEX)	Ancillary
Geriatric Depression Scale (Short) (GDSSHORT)	Behavioral Assessments
Genetic Counseling Form (GENCOUNS)	Ancillary
General Physical Exam (GENPHYEX)	Medical History
Grey Matter volume extraction from MRI T1 (GMVOLUME)	Ancillary
Hopkins Verbal Learning Test (HVLT)	Cognitive Assessments
Informed Consents Log (ICFLOG)	Enrollment
Image Performed Outside Expected Visit (IMGUNSCH)	Ancillary
INCIDENTS (INCIDENTS)	Safety
Inclusion Exclusion (INEX)	Enrollment
Investigator Signature (INVSIG)	Operational
iPSC Subject Eligibility (IPSCELIG)	Ancillary
iPSC Blood Sample (IPSCLAB)	Ancillary
IUSM_CATALOG (IUSM_CATALOG)	Ancillary
KINETICS (KINETICS)	Ancillary
Laboratory Procedures (LAB)	Biospecimens
Lexical Fluency (LEXICAL)	Cognitive Assessments
Neuropsyc. Test - (Line Orientation) (LINEORNT)	Cognitive Assessments
Letter - Number Sequencing (PD) (LNSPD)	Cognitive Assessments
Lumbar Puncture (LUMBAR)	Biospecimens
Medical History (General) (MHXGEN)	Medical History
Montreal Cognitive Assessment (MoCA) (MOCA)	Cognitive Assessments
Modified Boston Naming Test (MODBSTN)	Cognitive Assessments
Modified Schwab + England ADL (MODSEADL)	Motor Assessments
Magnetic Resonance Imaging (MRI)	Imaging
Cohort Assigned based on Mutation Result (MUTASGN)	Ancillary
Genetic Testing Results (MUTRSLT)	Ancillary
Subject Participation Status (MUTSTAT)	Ancillary
Genetic Mutation Testing Form (MUTTEST)	Ancillary
NOTIFICATIONS (NOTIFICATIONS)	Operational
Cognition Function- Short Form (NQCOGNS)	Cognitive Assessments
Communication- Short Form (NQCOMMS)	Cognitive Assessments
Lower Extremity Function (Mobility) (NQOLLEFS)	Motor Assessments
Upper Extremity Function- Short Form (NQOLUEFS)	Motor Assessments
nUPDRS Part I (NUPDRS1)	Motor Assessments
nUPDRS Part I: Patient Questionnaire (NUPDRS1P)	Motor Assessments
nUPDRS Part II: Patient Questionnaire (NUPDRS2P)	Motor Assessments
nUPDRS Part III (NUPDRS3)	Motor Assessments
nUPDRS Part III Post Dose (NUPDRS3A)	Motor Assessments
nUPDRS Part IV (NUPDRS4)	Motor Assessments
MDS-UPDRS Tagging Status (NUPDRTAG)	Ancillary
Consent Withdrawal for Optional Procedrs (OPTCNSNT)	Enrollment
Participation in Other Clinical Trials (OTHCTRL)	Operational
PAGE_DSCR (PAGE_DSCR)	Operational
Household Activity (PASEHSWK)	Motor Assessments
Leisure Time Activity (PASELS)	Motor Assessments
PATIENT_STATUS (PATIENT_STATUS)	Operational
Peripheral Blood Mononuclear Cells (PBMC)	Biospecimens
PD Features (PDFEAT)	Diagnostic Features
Use of PD Medication (PDMEDUSB)	Medical History
Use of PD Medication (PDMEDUSE)	Medical History
Neurological exam: Cranial Nerves (PECN)	Medical History
Neurological Exam (PENEURO)	Medical History
Participant Questionnaire (PQUEST)	Diagnostic Features
Pregnancy Form (PREGNANC)	Medical History
PD, HC and SWEDD Cohorts - Primary Diagnosis (PRIMDXPD)	Diagnostic Features
Prodromal, Genetic Unaffected and Registry Unaffected Cohorts - Diagnostic Questionnaire (PRODDIAG)	Diagnostic Features
QUIP-Current-Short (QUIPCS)	Behavioral Assessments
Research Advance Directive (RAD)	Enrollment
Randomization table (RANDOM)	Operational
Features of REM Behavior Disorder (REMBHVDS)	Behavioral Assessments
REM Sleep Disorder Questionnaire (REMSLEEP)	Sleep Assessments
Subject Continuation (SBJCONT)	Operational
SCOPA-AUT (SCOPAAUT)	Autonomic Assessments
Screening / Demographics (SCREEN)	Enrollment
Symbol Digit Modalities (SDM)	Cognitive Assessments
Semantic Fluency (SFT)	Cognitive Assessments
Signature Form (SIG)	Operational
Site Transfer Form (SITEXFER)	Operational
SITE_NAMES (SITE_NAMES)	Operational
Skin Biopsy (SKBIO)	Biospecimens
Skin Biopsy Eligibility (SKBIOELG)	Enrollment
Self Referrals PPMI Pathology Core (SLFREF)	Operational
Socio-Economics (SOCIOECO)	Enrollment
State-Trait Anxiety Inventory (STAI)	Behavioral Assessments
ST_CATALOG (ST_CATALOG)	Operational
Surgery for Parkinson Disease (SURGPD)	Medical History
TAP-PD Conclusion (TAPCONCL)	Ancillary
TAP-PD Subject Eligibility (TAPELIG)	Ancillary
TAP-PD OPDM Assessment (TAPOPDM)	Ancillary
TAP-PD OPDM Use Questionnaire (TAPUSE)	Ancillary
Telephone Follow-up (TEL)	Safety
Trail Making A and B (TMT)	Cognitive Assessments
UNATTAINABLE_DATA (UNATTAINABLE_DATA)	Operational
University of Pennsylvania Smell Identification Test (UPSIT) (UPSIT)	Olfactory Assessments
Visit Status (VISSTAT)	Operational
Vital Signs (VITAL)	Medical History
Whole Blood Sample (WHOLEBLD)	Biospecimens
Wearable and Sensor Adverse Event Log (WRSNSAE)	Ancillary
Wearable Conclusion (WRSNSCNL)	Ancillary
Wearable and Sensor Eligibility (WRSNSELG)	Ancillary
Wearable and Sensor Participation Status (WRSNSSST)	Ancillary
_ALL (_ALL)	Operational
AV-133 Scan Source (ind_av133_metadata)	Ancillary
AV-133 Analysis Data (ind_av133_sbr)	Ancillary
SPECT Scan Information Source Document (ind_dat_source_data)	Ancillary
FBB Scan Source (ind_fbb_metadata)	Ancillary
FBB Analysis Data (ind_fbb_results)	Ancillary
MRI Imaging Data (ind_mri_metadata)	Ancillary
MRI Imaging Data Transfer Information Source Document (ind_mri_source_data)	Ancillary
ind_rbd_psg (ind_rbd_psg)	Ancillary
DATScan Analysis (ind_spect_sbr)	Ancillary
SPECT Visual Interpretation Results (ind_spect_vi)	Ancillary
Olfactory SRQ (ind_srq)	Ancillary
Olfactory UPSIT (ind_upsit)	Ancillary