NUPDRS2P
Table Description:
Detailed notes for this table are included below.
1.0 Description: nUPDRS Part II: Patient Questionnaire
View Source CRFs
2.0 CRFs: Click on any PAG_NAME link below to be taken to a screenshot of how this eCRF is currently implemented in the PPMI 2.0 Study.
2.0 Data Dictionary
Table Constraints:
2.0 Code Book
ITM_NAME |
CODE |
DECODE_1.0 |
|---|---|---|
NUPSOURC |
1 |
Patient |
NUPSOURC |
2 |
Caregiver |
NUPSOURC |
3 |
Patient and Caregiver - Equal Proportion |
Missing Columns
ITM_NAME |
DSCR_1.0 |
|---|---|
NP2DRES |
DRESSING |
NP2EAT |
EATING TASKS |
NP2FREZ |
FREEZING |
NP2HOBB |
DOING HOBBIES AND OTHER ACTIVITIES |
NP2HWRT |
HANDWRITING |
NP2HYGN |
HYGIENE |
NP2RISE |
GETTING OUT OF BED, CAR, OR DEEP CHAIR |
NP2SALV |
SALIVA + DROOLING |
NP2SPCH |
SPEECH |
NP2SWAL |
CHEWING AND SWALLOWING |
NP2TRMR |
TREMOR |
NP2TURN |
TURNING IN BED |
NP2WALK |
WALKING AND BALANCE |
NUPSOURC |
Primary Source of Information |
Details
In the EDC, the MDS-UPDRS Part I and Part II patient questionnaires were combined into one form (NUPDRSP). They were split back out into their respective tables (NUPDRS1P and NUPDRS2P) during the transfer to LONI, which matches the 1.0 structure. The NUPDRS2P table is conceptually the same between 1.0 and 2.0. Two small design differences have been outlined below.
PAG_NAME
In 1.0, the PAG_NAME for this table was NUPDRS2P while in 2.0 the PAG_NAME is NUPDRSP. This is due to the design of the EDC. PAG_NAME is not seen in the above representation of the data dictionary, because it is a standard variable present in all tables derived from CRFs. However, you can see the PAG_NAME in the downloadable version of the PPMI 2.0 data dictionary.
NP2PTOT
The total score is the sum of NP2SPCH, NP2SALV, NP2SWAL, NP2EAT, NP2DRES, NP2HYGN, NP2HWRT, NP2HOBB, NP2TURN, NP2TRMR, NP2RISE, NP2WALK, and NP2FREZ. It will not be computed if there are missing values in any of these columns.
Codebook
Besides NUPRSOURC, no variables from the NUPDRS2P table were included in PPMI 1.0’s Code List. In 2.0, all variable options from the NUPDRS2P table have been added to the codebook to document what the different codes mean for each question.