FAMHXPD
Table Description:
Detailed notes for this table are included below.
1.0 Description: Family History (PD)
View Source CRFs
1.0 CRFs: Click on any PAG_NAME link below to be taken to the CRF used in the PPMI 1.0 Study.
2.0 CRFs: Click on any PAG_NAME link below to be taken to a screenshot of how this eCRF is currently implemented in the PPMI 2.0 Study.
2.0 Data Dictionary
Table Constraints:
Missing Columns
ITM_NAME |
DSCR_1.0 |
---|---|
BIODAD |
Biological Father |
BIODADPD |
Biological Father with PD |
BIOMOM |
Biological Mother |
BIOMOMPD |
Biological Mother with PD |
FULSIB |
Full Siblings |
FULSIBPD |
Full Siblings with PD |
HAFSIB |
Half Siblings |
HAFSIBPD |
Half Siblings with PD |
KIDSNUM |
How many children do you have |
KIDSPD |
How many children with PD |
MAGPAR |
Maternal Grandparents |
MAGPARPD |
Maternal Grandparents with PD |
MATAU |
Maternal Aunts and Uncles |
MATAUPD |
Maternal Aunts and Uncles with PD |
PAGPAR |
Paternal Grandparents |
PAGPARPD |
Paternal Grandparents with PD |
PATAU |
Paternal Aunts and Uncles |
PATAUPD |
Paternal Aunts and Uncles with PD |
STAFFCD |
Examiner |
Details
This CRF was redesigned in PPMI 2.0 to simplify it and to take advantage of conditional logic to avoid errors.
ANYFAMPD
If the answer to this variable is No, then none of the PD questions for individual family members will be collected. This means that, unlike in 1.0, there may be null values instead of zeros in these columns.
BIOMOMPD, BIODADPD, MAGMOTHPD, MAGFATHPD, PAGMOTHPD, PAGFATHPD
These variables are represented as booleans in 2.0, but were continuous variables in 1.0. Additionally, any total number of family member question associated with these categories have been removed. The assumption is that the total number is always 1 for all these family members.
Family Member Sub-Divisions
The way in which different categories of family members are divided has changed between PPMI 1.0 and 2.0. A summary of how each category is captured is below:
Total |
PD |
||
---|---|---|---|
Mother |
1.0 |
BIOMOM |
BIOMOMPD |
2.0 |
BIOMOMPD |
||
Father |
1.0 |
BIODAD |
BIODADPD |
2.0 |
BIODADPD |
||
Siblings |
1.0 |
FULSIB |
FULSIBPD |
2.0 |
FULBRO |
FULBROPD |
|
FULSIS |
FULSISPD |
||
Half Siblings |
1.0 |
HAFSIB |
HAFSIBPD |
2.0 |
MAHAFSIB |
MAHAFSIBPD |
|
PAHAFSIB |
PAHAFSIBPD |
||
Maternal Grandparents |
1.0 |
MAGPAR |
MAGPARPD |
2.0 |
MAGMOTHPD |
||
MAGFATHPD |
|||
Paternal Grandparents |
1.0 |
PAGPAR |
PAGPARPD |
2.0 |
PAGMOTHPD |
||
PAGFATHPD |
|||
Maternal Aunts and Uncles |
1.0 |
MATAU |
MATAUPD |
2.0 |
MATAU |
MATAUPD |
|
Paternal Aunts and Uncles |
1.0 |
PATAU |
PATAUPD |
2.0 |
PATAU |
PATAUPD |
|
Maternal Cousins |
1.0 |
||
2.0 |
MATCOUS |
MATCOUSPD |
|
Paternal Cousins |
1.0 |
||
2.0 |
PATCOUS |
PATCOUSPD |
|
Children |
1.0 |
KIDSNUM |
KIDSPD |
2.0 |
KIDSNUM |
KIDSPD |
Future State
For the purpose of analytic utility, most of the missing variables have been marked as DERIVED
. Though we are no longer directly capturing this information in PPMI 2.0, it can be easily derived from the data that we do have, or can be imputed with the assumption that all participants have one of each Mother, Father, and Maternal and Fraternal Grandmothers and Grandfathers.